Friday, May 27, 2016


Okay...truth be told, I'm scared.

There, I said it out loud.

I'm only saying it because I think there's power in admitting fear. There's a measure of control in the admission. Ironic, huh? :D
Phone number removed because this is a public blog!

I bought a medical alert ID bracelet.

I hope it's wasted money, but I have read several stories about different people having issues.

Okay...seizures and hallucinations. There, I said it out loud.

Seizures and hallucinations.

To be clear, I don't expect to have seizures and hallucinations. But those are indeed symptoms.

AE is rare enough there isn't good information out there to know what percentage of people have those symptoms, at what point in the disease progression people have them, or any other specifics. But, if I were to have a seizure, giving me anti-seizure medication wouldn't do anything to help. I would need steroids.

There is also a slight chance I could become lost and not know who I am, not know how to use the phone, not know my husband's name. Well...there's not a slight chance, that happened already. ((In case you missed that story...I pulled into my driveway one day and forgot how to open the car door. I was struck with the thought that I didn't know how to get out of the box I was in. I started looking around trying to figure out how to contact "that man" (my husband whose name I had forgotten) so I could get out. It didn't last long. I "found" the door handle and remembered Dwayne's name fairly quickly. But forgetting those things even for a minute was the final straw that caused me to make the initial doctor's appointment.)) So...if that were to happen again, and last longer the next time, I wanted to have a safeguard in place.

Yup. I'm scared.

When one thing happens one time, you can chalk it up to a fluke. When various things happen together and they add up to something that probably isn't a's harder to ignore. (Don't get me wrong, it's still possible to live in denial, it's just hard to breathe when your head is in the sand.)

Wearing this bracelet is a reminder of those symptoms and a reminder that I'm scared. As much as I would really like to ignore what is going on, as much as I would like to keep my head buried, as much as I would like to think the diagnosis is wrong and there is some other explanation...I can't. The truth doesn't change just because I refuse to believe it.

The incidence of AE is about 1 in 100,000.  The population of Huntsville is right at 180K. That means it's probable only one or two people in this town have this thing. There are about 4.8 million in Alabama, that means about 480 have it in the state. 32.4 million in the US and a wopping 740.4 million in the world likely have AE. Am I really one of 740.4 million (out of 7.4 billion total people) in the world who likely have this thing?

If I am one of these...I can reduce my fear of the symptoms down even more by supposing the incidence of one of them actually happening. Maybe the chance is 50% it will happen to me, so just one chance in 64.8 million. Maybe it's only 10% which makes it 1:74 million. I think I like those odds better but playing with the numbers doesn't really change anything at all. (And, my math and or my logic is probably WAY wrong...)

No matter what the nubmers are, if the diagnosis is wrong or if I don't have the symptom, buying this bracelet and being scared really didn't matter in the end. If this isn't what the dr thinks it is. If there really is something else going on, then all of this is a silly, completely unnecessary precaution. I'm okay with that. I'm okay with finding out I really have a hormonal migraine exacerbated by stress and I was wearing a dumb bracelet for no good reason. Because there's no harm done in that case.

Wearing this bracelet won't help me not have a seizure.

But what if I do have it, and what if I do have an "issue"? Wearing the bracelet might help me get the help I need faster.

Matthew 6:27 says, "..who of you by being worried can add a single hour to his life?"

It think the key is to be scared and to not worry. It's okay to be scared. It's okay to admit it. It's okay to let that fear help me to make preparations and take precautions. But worry does me no good at all. Healthy fear on the other hand does serve a purpose.

Thanks for stopping by and sticking around.

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